In all the years I have been blogging, I have not known another blogger who lived so close to me. Ami lives quite near to Beetley, but so far, we haven’t had the chance to meet.
I am very happy to present her truly excellent guest post here, which is unedited. If you know anyone who is disabled, or who blogs about disability, then please pass this on, so they can connect, and be inspired. And if you feel so inclined, please reblog, or share on any other social media platform.
THE OPPOSITE PERSPECTIVE: I’M MEANT TO BE DISABLED
By Ami Ireland.
You’ve just read the title and probably raised an eyebrow, right? Let me tell you how I obtained that perspective.
A Brief Summary
I’m almost 25 years old, however, for the majority of my life, to say it’s been a rollercoaster would be an understatement. From a very young age, I endured bullying, both at school and at home. I’ve been abused, physically, mentally and sexually. It was no surprise that I was diagnosed at the age of 13 with Depression.
I always felt like I could never be myself, I had to be the person that everyone else presumed me to be. I hated myself and the body I was in. I always sought validation.
But my life changed, most would say for the worse, but in my opinion, it changed for the better.
In March 2018, I was admitted to hospital as I was unconscious. I was admitted to Critical Care/Intensive Care and put in an induced coma to give my body a chance to recover. Everybody was convinced I wasn’t going to wake up. Nobody knew what caused me to be unconscious, but within the first couple of days of being in Critical Care, I contracted Bilateral Pneumonia.
As my body was already very weak, this was killing me. The odds were against me. Thankfully, the NHS saved my life, more than once.
This was just the beginning of a 9-month hospital and rehabilitation stay. In short, I’d lost the ability to sit up, stand up and walk.
I will be honest, at first it was very difficult for me to accept that this was my life now. I felt like I no longer had a purpose in life. I had nothing to work towards.
That changed, two months into my hospital stay, when my fiancé (at the time) suggested that we set a date for our wedding. This was the push I needed, I was absolutely determined to walk down that aisle, albeit with a mobility aid or the assistance from others, I was going to work hard and do it.
In September, this year, I did it. I walked down the aisle, with the support of my Mum and my best friend’s boyfriend. I walked down that aisle and married the love of my life.
But I couldn’t have got this far without a different perspective.
All or Nothing
Before 2017, I was an introvert, I never said boo to a goose. But when I started to lose my hearing, my central vision, and then my mobility; I lost myself even more, I sunk lower and lower into the shell I had already been hiding in.
Back then, I could have had a different perspective. But I gave up. I didn’t want to fight anymore.
However, when I became more aware of my surroundings in hospital, I felt I’d been given a second chance at life – I saw this as a new beginning, a new chapter and a new me, just with a few illnesses and a wheelchair in tow.
I’ve met some incredible people along the way, my physiotherapists and occupational therapist, nurses and doctors, the disabled community and Scope (a UK charity for disabled people) too.
The NHS
For 9 months, I witnessed the amount of work these true superheroes do. As I’d never met them before, this was a chance for me to be myself.
I quickly learned that by being myself, I’m very sarcastic and can have a quick-wit, at times. I no longer held back what was going through my mind, albeit being random ramblings. The more I was open and honest, the more I felt happy with who I was (and still am).
Quite a few friendships were formed throughout my hospital and rehabilitation stay; it was hard not to get along with them as I spent more time with them then I did my family. Hospital settings are usually quite negative, but I wanted to switch that around.
I did have my bad days, but making the staff smile and laugh was a good distraction. Seeing them happy, made me happy.
That’s why I loved being around these amazing people, and why it broke my heart when I was transferred or discharged. They liked me for who I am.
Social Media & The Disabled Community
Social media is often represented very negatively; however, it has improved my quality of life. During the early days of coming to terms with what had happened, I felt very alone, I didn’t know anybody else who was in the same position as myself. Soon, I discovered the disabled community on social media and I simply cannot put into words how much of a positive impact they have made in my life. I’ve never felt so included and accepted in my life!
I’ve made quite a few good friends within the community and it’s comforting knowing there is others who would never judge me, I can share my experiences without receiving pity. It’s incredibly refreshing. So far, I’ve met one person face-to-face, and being with her was lovely. Not only is she good company but I never felt like I had to hide who I am.
I’m planning to meet others, from the community, next year!
With all that being said, I would not have met these people if I were not disabled. I may have come across them or seen them in campaigns, but I would not have the courage to speak to them otherwise. Like I said, I’ve never felt accepted beforehand.
Scope (UK Charity for Disabled People)
If you had asked me years ago if I knew I would get involved with Scope, I would have been hesitant as I’d not heard a lot at all about the charity, only that I walked past one of their charity shops in town (years ago). Good old faithful Google led me to Scope, during the early days I was desperate to find others who had experienced the same as myself. Scope’s Online Community has been my guiding light, the light at the end of a very dark tunnel.
Almost 2 years on and I’m still very much a permanent fixture within Scope. I’ve written guest blogs, got involved with a campaign, and I was the face of their latest fundraising appeal. Being part of Scope has led me to amazing opportunities.
None of this would have happened if I were not disabled.
I’m certain I would still be the introvert I was before I became disabled. Everything happens for a reason. Being disabled has given me the confidence to voice my opinion, aim to change perceptions in today’s society, but most of all, I’m a realist and I’m happy.
If you want to read more from Ami, here is a link to her blog.
https://undercoversuperhero.com/
And you can follow her on Twitter too.
@AmiHIreland
How nice to share Ami’s post, Pete. Best to you.
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Thanks, Jennie. Her story is one of determination and positive attitude. We could all do with more of both.
Best wishes, Pete.
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Yes, and yes! Best to you, Pete.
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An inspiring story that concentrates the mind on what’s important. Experiences like Ami’s and even what my own kids have been through (and are going through) bring home to me how fortunate I have been in my life.
Thanks for the link, Pete; I’m heading over to Ami’s blog.
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Many thanks, Cathy. Ami’s writing and charity work is indeed inspirational to many others in similar situations.
Best wishes, Pete.
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Thank you Cathy 🙂
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Thank you for a very interesting posting. Michael
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Thanks very much for reading, Michael.
Best wishes, Pete.
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Thanks for reading Michael 🙂
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Its always a great pleasure to do, Ami! Best wishes, Michael
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Ami, thank you for your courage and for your writing. I am following your blog and hope to learn much more about you. xox
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Thanks very much, Lara.
Best wishes, Pete. 🙂
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Thank you so much Lara! If theres anything you would like to know more about then please do not hesitate to get in touch! 🙂
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Inspiring stuff, so good to hear a positive voice when there is so much negativity about.
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Yes, inspiring is definitely the right word, Eddy.
Cheers, Pete.
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Thank you Eddy 🙂
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Very good of you to reblog. Amy sounds to be doing well.
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Thanks, FR. She has a great attitude, and is very positive. Makes me feel ashamed for moaning about my life! 🙂
Best wishes, Pete.
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Don’t feel ashamed Pete, I still moan a lot Haha!
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Thank you for reading 🙂
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You’re welcome, sorry I misspelled your name! I not Y 🙄😊
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Its OK 🙂
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I’m not quite sure I understand what the diagnosis was behind these various impairments/disabilities, but I’m very sure that many people would not face such adversities at such a young age with the courage and spirit that Ami has. Fortunately, she’s found a supportive community, which is surely invaluable. And I think she’s discovered a gold mine of respect and admiration here at beetleypete.
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Thanks, David. She has certainly found an excellent support network through the Scope Charity, and I am sure that some who have read here story here will be inspired by her positive attitude to dealing with disability.
Best wishes, Pete.
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Thank you David for your kind words. I will try to keep it short, but I have Mitochondrial Disease which is a very rare disease, which I’m currently undergoing further testing to determine which type i have. I have Transverse Myelitis which is where my spinal cord became inflamed. I have Sensory Ataxia which affects my balance and co-ordination. I have bilateral hearing loss to a degree and Optic Neuropathy (central vision loss) 🙂
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I’m going to look all that up! Thanks, Ami. You’re a star!
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No problem 🙂
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Great story you shared with us Pete 🙂 Ami Ireland is truly inspiring and despite all of the hardships she has faced, has really came into her own 🙂 I see that she has replied on this post and may I just say to Ami that you are a truly (and in the positive sense) inspiring individual 🙂 Anyway, may Pete and Ami keep up the great work as always 🙂
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Hi, John. Many thanks for your kind words about Ami.
Best wishes, Pete.
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Thank you so much for your lovely words John 🙂
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That lovely feeling of redemption….priceless.
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Thanks for reading and commenting, Arlene.
Best wishes, Pete.
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It’s a lovely post Pete 🙂
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Thank you for reading Arlene 🙂
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Ami, you are the hero. How amazing is your story. It was nice to meet you! Thanks, Pete.
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Thanks very much, Cindy.
Best wishes, Pete. x
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Thank you Cindy, its lovely to meet you too! 🙂
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Thanks for the link, Pete. I went to her blog and found she provides a forum for all sorts of writers called “The Reality of…” Here there are many enlightening posts by people with all sorts of physical challenges. I learned a lot already and will begin to follow her blog since some of the ones I follow have dropped off the blogosphere.
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Thanks so much. Elizabeth. Her blog highlights the struggle of so many people.
You are a good woman, but I already knew that. 🙂
Best wishes, Pete.
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Thanks Pete. It is amazing that you can know that across the ocean.
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Thank you so much Elizabeth! Lovely to meet you 🙂
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Yours is an amazing story Amy, one that needs to be shouted from the rooftops. The world needs more stories like this. Bravo to you, Ami and thanks to Pete for sharing it. xo
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Thanks very much, Darlene. A story that needed to be told. 🙂
Best wishes, Pete.
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Thank you Darlene! 🙂
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Ami, you are a wonderful role model for many others!!
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Many thanks, GP. She is indeed! 🙂
Best wishes, Pete.
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Thank you so much! 🙂
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Reblogged this on DearTedandJody.
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Thanks very much, Theo. I left a comment. 🙂
Best wishes, Pete.
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Thank you for reading and sharing! 🙂
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Thank you for sharing your story, Ami. It’s very powerful and inspirational to others. I’m glad you found your voice.
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Thank you Susanne 🙂
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Thanks for reading and commenting, Susanne.
Best wishes, Pete.
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She has quite a story of turning adversity into something powerful. Thanks for sharing Pete!
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Thanks for sharing Ami’s story. Good to ‘meet’ you Ami 🙂
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Thank you Mary and its lovely to meet you too 🙂
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Thanks very much, Mary. It was my pleasure, a wonderful post.
Best wishes, Pete.
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Ami, when you speak of being around amazing people in your fight, they must feel the same way being around you; because you are truly amazing. Keep up the good fight.
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Thanks for those kind words, Don.
Best wishes, Pete.
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Thank you so much Don! That’s very kind of you 🙂
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Good to meet you Ami and see things from another perspective.
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Thank you and it’s nice to meet you too! 🙂
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Thanks very much for reading and commenting, Janet.
Best wishes, Pete.
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Thank you so much for sharing Ami’s inspirational story Pete!
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Thanks, Kim. She is a special young lady indeed.
Best wishes, Pete.
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Thank you for reading 🙂
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